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Jak inhibitor Options
jenni_b
#1 Posted : Wednesday, June 26, 2013 11:17:59 AM Quote
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Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Hi

I'm on the approach to this now, the hospital tried to get it for me as trial, just prescribed or compassionate grounds

It's new
Expensive
And I'm far from a 'safe bet'

But

They've kept trying and (yippee) looks like they have started to change their minds
Hospital say that this means I am not to be too over the moon yet
But they are saying its looking positive on compassionate grounds

BigGrin
how to be a velvet bulldoser
Paula-C
#2 Posted : Wednesday, June 26, 2013 2:15:08 PM Quote
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Location: Nottinghamshire
I hope they let you try it Jenni, I remember you posting about a while ago.

The expense.....well, like the adverts says.....You're Worth It.

Perhaps if you can't be over the moon yet, aim for...


Somewhere over the rainbow
Way up high,
There's a land that I heard of
Once in a lullaby.

Somewhere over the rainbow
Skies are blue,
And the dreams that I dare to dream
Really do come true.

Someday I'll wish upon a star
And wake up and the pain is far
Behind me.
Where troubles melt like lemon drops
I'll be dancing on the table tops
That's where you'll find me.

Somewhere over the rainbow
I'll be pain free
Now it's my time.
and I'm sure you will all agree

Happy days are mine to see
Beyond the rainbow
I will be pain free

Just trade in your red boots for so new red sparkly shoes.

Much Love and fingers, toes and everything else crossed. xxxxxxxxxxxxxxxxxxxx

Paula x
jenni_b
#3 Posted : Wednesday, June 26, 2013 5:07:19 PM Quote
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Location: nr Southampton
Mouth open at your kindness !

What a lovely lovely lyric
how to be a velvet bulldoser
Paula-C
#4 Posted : Thursday, June 27, 2013 1:57:14 PM Quote
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Thank You Jenni

Just glad you like it.

Love Paula x
jenni_b
#5 Posted : Thursday, June 27, 2013 3:16:02 PM Quote
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Location: nr Southampton
http://www.pharmacist.co...-novel-jak-inhibitor-ra

Information for you all. it does look promising, i suppose they all do.

I dont know whether I should feel excited or not? x
how to be a velvet bulldoser
jenni_b
#6 Posted : Thursday, June 27, 2013 3:18:16 PM Quote
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Location: nr Southampton
http://www.arthritistoda...-and-oral-biologics.php

this one is a bit more readable
how to be a velvet bulldoser
Paula-C
#7 Posted : Thursday, June 27, 2013 4:48:20 PM Quote
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Location: Nottinghamshire

I don't know if this is any help to you Jenni

http://rawarrior.com/?s=...bitor&x=30&y=12

Paula x



zena_mary
#8 Posted : Thursday, June 27, 2013 7:11:43 PM Quote
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Location: Powys
Looks good Jenni, I feel excited about it for you! BigGrin

xxx
jeanb
#9 Posted : Friday, June 28, 2013 8:50:36 AM Quote
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Location: Timperley
She dances on tables with her Zimmer, Paula. Thought you'd seen it! Fab words to o.t.r.-love them. X
emily
#10 Posted : Friday, June 28, 2013 7:53:37 PM Quote
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Fingers crossed for you dear jenni! Not been for a while so need to catch up! Hello jean and lovely words paula.
Xxx.
jeanb
#11 Posted : Saturday, June 29, 2013 8:28:00 AM Quote
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Emily!!! Would love a catch up some day. Have sooooooo missed you xxxxxxxxx
jenni_b
#12 Posted : Monday, July 01, 2013 8:44:28 AM Quote
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Hellllllo Emily (waives manically!)
how to be a velvet bulldoser
emily
#13 Posted : Monday, July 01, 2013 9:32:53 PM Quote
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Posts: 89
Would love to catch up and have missed you both too! Is Doreen, Alison, Julie ( bellie dance), Chockers, Liz and Brenda still around? I have a diff email add now and don't have yours so will call Jenni to find out so we can all have a good natter. Do you all still meet up, we had such a great time in Stratford didn't we, a good few years ago now!
Much love and a gentle hug (hope S, R and the kids are well)
xxx.
jeanb
#14 Posted : Tuesday, July 02, 2013 8:05:01 PM Quote
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I"d love to hear from you and am sure Jen will pass on my e-mail to you. We had fun at our get-togethers, didn't we?
jenni_b
#15 Posted : Wednesday, July 17, 2013 2:21:18 PM Quote
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I will gladly pass things on and would LOVE a natter.

how to be a velvet bulldoser
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